Every day I take one piece of this chocolate , I have te goodie one hidden for later consumption. hehehe
Let’s recap the day
I don’t sleep. Ok I nod. I start a reply fall asleep wake up finish the reply fall asleep wake up and finish hit post or fall asleep again , then wake up say “shit” and hit the post key. Hahaha this process takes 20-30 minutes. It is done many many times throughout the night. Some of you have received a reply that is nothing but JUMBO. Others are completely coherent. And every where in between. .
So I am up, around 6 am I wait for others to get up.
They are all so tired and wiped. The emotional part of this for family members is different then mine. I think about going into a home or some facility. Would it make it better, maybe, maybe worse. There is a lot to work out.
I take my pills
Steroids, blood pressure , blood sugar , pain , check sugar and shot if needed . Shot is needed of one unit. We will not do the shot unless Rob is up and administer . I will leave to the hospitol for the Radiation treatment at 0945 hrs.
There is a email from the VA asking if the new apointment on the 12 is ok.
I will just take the apointment and deal with the issue through another channel. The problem is management not the PC .
That takes me to 0800 am and no coffee, everyone is still sleeping. They are starting to get up. Putting up coffee and getting my clothes teoghter. Wash and get ready. Sounds easy. Right. It is easier getting 4 8 yr old ready for the school bus. Hahahaha
We left the house at 0945 and arrived at Wesley for the treatment at 1020 am. They take us right in and inform the oncologist want to see me.
Oncolgest
Friday drop steriods to 8 mg per day Minor improvements with right side. Slow steady recovery MRI 30 -60 days 5 lbs weight loss 1 wk Nutrition meeting now This will be a long term treatment with monthly follow ups Rob meet with the nutritionist.
We left and arrived at IHOP around 1 pm ,1300 hrs .we had a very nice time just sitting outside of what has become normal . I really enjoyed it .
That’s the way the rest of the week will go with the following Nurse Steve tues & thurs 3pm Paul Friday 4 pm
Every other tues11 am Immunotherapy Every 4th Tuesday Physical therapy , waiting on conformation/schedule
Ooohhh shit. My hair is falling out. Here we go again
Its 1 am or 0100 . I think I will just sit for awhile and flick the channels. The wife went to bed here in the room. She hurt her hip. There is no way you can lift me, I think its from sleeping on the couch. She is in bed now. Much better. I can keep an eye one her.
I am going to call it and see where this hair is falling out of. I am tired- maybe a littl worn down.
Wolfhart