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Schedule:
0700 depart to oncology VA 0800 check in vitals and blood work 0900 met with oncologist 1000. Depart to Wesley for radiation treatment 1130 complete radiation treatment 1200 receive. Bone treatment and go home
1) We met with oncologist at 0830 . Deceived to do all treatment ( VA ) where we could take care of things at the same time. Set thing up on a two week schedule. That way we will never skip anything and every thing will e laid out.
2) I did the radiation early. I should remember who I am some time in the next 72 hrs. Hahaha . It is however made me worn out. You shoot the brain and you will get side effects.
3) Going to bring primary care onboard. meds need monitoring to include interaction Records recorded Coordinations with Physical therapy and all other providers outside VA system. We have to many fingers in this process not to. Its only been 9 months. Time to get in the game.
4) 10 days of radiation left via Wesley . Tomorrow restart Immunotherapy. That way we can start building again. The radiation treatment, steroids and cancer is causing problems with other system. That is the problem. What will help against the cancer causes other problems. We have to get the right people in place and things on stand by so we can react and move quickly. We could have saved 1 week on this one. But its not called the speedy Gonzalaz of cancer. This time it worked out if the treatment shrinks the tumors . We will know that when we do a full body scan in 2 weeks.
I am sitting here trying to get you some information. Going to call it here in a moment. Cancer brain is true. :)
I made the right decision to fight this so far. It is hard but there are still way to many positives then negatives . It is hard as I have said in post all through this journey we are on. There will be ups and downs. Family goes through hell on a emotional ride. Don’t push them out. They hurt. Try and bring them in so they can get some understanding. They want to help there is just nothing they can do. I guess the best thing our what I am saying is show compassion. It is easy to be bitter and lass out at others. Do the hard thing, thats what men do. The right thing no matter the cost.
Wolfhart